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information about vision and visual impairment

Albinism World Alliance (AWA)

Homepage: http://www.albinism.org/awa.html

AWA is a network of albinism in various countries. The AWA was founded in 1992 by representatives from Australia, Canada, Tanzania, the UK and the USA. It has now support groups in several countries as well.

American Association for Pediatric Ophthalmology and Strabismus - AAPOS

Homepage: http://www.aapos.org

Information about ophthalmology and children.

Asian Eye Care (AEC)

Homepage: http://asianeyecare.nl/en/over-aec-2/

AEC is a Dutch medical organization dedicated to treatment and prevention of blindness in Asia.

Battens Disease Support and Research Association

Homepage: http://www.battens.org.au/

The Battens Disease Support and Research Association (BDSRA) was formed in the USA in July 1986. The Australian Chapter of the BDSRA was formed in 1995 by parents of children affected by Battens Disease.

Blindness related stamps from all over the world

Homepage: http://www.blindianastamps.com

An incredible collection of stamps regarding all aspects of visual impairment.

European Blind Union (EBU)

Homepage: http://www.euroblind.org/

The European Blind Union is a non-governmental, non profit-making European organization founded in 1984. One of the six regional bodies of the World Blind Union, it is the only organization representing the interests of blind and partially-sighted people in Europe.

Foundation for Fighting Blindness

Homepage: http://www.FightBlindness.org

Their mission is to do research in order to restore sight. Information on several eye conditions.

Glaucoma

Homepage: http://www.glaucoma.org/

Get the Facts about Glaucoma.
Understanding the basics of glaucoma is the first step to protecting your vision. We invest in the advancement of scientific progress to preserve sight.

Glaucoma Research Institute and Glaucoma Associates

Homepage: http://www.glaucoma.net/

The page gives information about their research and questions regarding glaucoma.

International Society for Low Vision Research and Rehabilitation (ISLRR)

Homepage: http://www.islrr.org/

The objectives of ISLRR are to stimulate scientific research in the field of low vision and the field of rehabilitation of people with low vision and to promote the exchange of information in these fields.

Lea Hyvärinen´s homepage

Homepage: http://www.lea-test.fi

This homepage gives the most extensive multilingual information on low vision in children.

Lighthouse International

Homepage: http://lighthouse.org/navh

Founded in 1905, the Lighthouse became a pioneer in the field of Vision Rehabilitation, and is today a leading resource in helping people overcome the challenges of vision loss.

Lighthouse interntional

Homepage: http://www.lighthouse.org

Organization dedicated to fight vision loss through prevention, treatment and empowerment.

Low Vision Gateway

Homepage: http://www.lowvision.org/

This can be your starting point to access the low vision resources of the world.

Low Vision Online

Homepage: http://www.lowvisiononline.unimelb.edu.au

Low Vision Online is designed for people who know or work with someone with low vision. It is not designed for low vision specialists but for those who in their very day life work need to know more about low vision.

Macula Lutea - an information resource on vision and visual impairment

Homepage: http://home.swipnet.se/macula-lutea/

Macula lutea is the point of clearest vision at the centre of the retina. I have chosen this name for my homepage as my ambition is to present clear information about early intervention, education and rehabilitation of persons with a visual impairment without using excessive graphics like horses flying across the screen.

National Organization for Albinism and Hypopigmentation

Homepage: http://www.albinism.org

Volunteer organization for persons and families involved with the condition of albinism.

NICHCY

Homepage: http://nichcy.org/disability/specific/visualimpairment

Definitions of visual impairment and useful links to additional resources.

Nystagmus Network

Homepage: http://nystagmusnet.org

A UK-based self-help group providing support for adults and children with nystagmus.

ORBIS

Homepage: http://www.orbis.org/

A non-profit humanitarian ordganizaton, ORBIS works in developing countries to save sight through hands-on training, public health education and improved access to eye care.

Rarelink

Homepage: http://www.rarelink.fi

Rarelink is a link collection for rare diseases. This site is a useful source for highly qualified information aimed at both patients next of kin and experts.

Retina International

Homepage: http://www.retina-international.org

Retina International is a voluntary umbrella association of 33 national societies. The focus is on retinitis pigmentosa, Usher syndrome, macular degeneration and allied retinal dystrophies.

Royal National Institute for the Blind, UK

Homepage: http://www.rnib.org.uk

We are the UK’s leading charity offering information, support and advice to over two million people with sight loss.

Our pioneering work helps anyone with a sight problem – not just with braille and Talking Books, but with imaginative and practical solutions to everyday challenges.

Our projects such as Talk and Support and Parents’ Place make a difference to people’s lives. We need your support to fund our vital work. As a charity we rely on your generosity.

People are still losing their sight unnecessarily. We campaign to eliminate avoidable sight loss and support research into the causes and latest treatments of eye disease.

SESA

Homepage: http://ftp.akaccessiblemedia.org/drupal/pub/Vision/SESASpring07CVI.pdf

Cortical Visual Impairment has been the topic of Julie Smith, education specialist at SESA. “Due to improved medical care, children with severe brain insults have increasingly begun to survive over the last 30 years. The vast majority have tended to have severe multiple disabilities, including a variety of learning difficulties. A minority of them also has permanent visual loss, but normal or minimally abnormal eye examinations.
“Traditionally, educators for the visually impaired assisted only those whose eye conditions were associated with visual loss (reduced acuity). Now it has become
necessary to offer services for those whose visual loss is due to brain damage. Thus, the definition of CVI was born.”

Sightsavers International

Homepage: http://www.sightsavers.org.uk

International charity working with partners to eliminate avoidable blindness in the developing world.

Statewide Vision Resource Centre, Australia

Homepage: http://svrc.vic.edu.au

The aim of the SVRC is to promote an understanding of the educational needs of students who are blind or have low vision. The web page contains extensive information on eye conditions.

The Guardian

Homepage: http://www.theguardian.com/society/blindness

Special issue on Blindness and Visual Impairment

Unite for Sight

Homepage: http://www.uniteforsight.org/

As a pioneer of responsible eye care and healthcare delivery, Unite for Sight serves, empowers and mentors organizations and individuals to provide high-quality outcomes.

Vision Aware

Homepage: http://www.visionaware.org

Vision Aware is a self-help resource centre for vision loss. The page contains information about living and coping with visual impairment and information about eye conditions.

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